by Asmaa Javed | Dec 31, 2024 | Voices of ECD
“I studied everything I could about ECD and thought I had a death sentence coming very soon.” – by Hugh Welborn.
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
The journey to a diagnosis can be stressful for the entire family. Positive support is critical to a patient’s outlook and response to the news. Despite the effects of COVID and the rarity of his newly found disease, William Dean finds his path and fights to stay...
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
The diagnosis of a rare disease is punctuated by the gift of life, from an ECD spouse perspective.
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
An Erdheim-Chester disease patient tells her hope-filled story for Rare Disease Day 2021.
by Asmaa Javed | Dec 31, 2024 | Voices of ECD
Family and friends gather on Father’s Day to reach new heights for research on rare cancer.
