by Asmaa Javed | Dec 31, 2015 | Voices of ECD
An ECD patient is interviewed and quoted in Popular Mechanics on how vemurafenib has changed her life.
by Asmaa Javed | Dec 31, 2014 | Voices of ECD
A video from Memorial Sloan-Kettering Cancer Center in New York features an ECD patient, Rita, who is currently enrolled in the vemurafenib trial. Rita’s is a remarkable story that begins at the 2 minutes, 22-second mark of this 5-1/2 minute video.
by Asmaa Javed | Dec 31, 2013 | Voices of ECD
TV interview of Kathy and Charles, two members of the ECD Global Alliance. The interview explains what motivates Kathy, President of the ECD Global Alliance, to continue searching for better treatment options for ECD and supporting the ECD community.
by Asmaa Javed | Dec 31, 2012 | Voices of ECD
An article about Kit, an ECD patient, and her husband, Rich.
by Asmaa Javed | Dec 31, 2012 | Voices of ECD
The daughter of an ECD patient has written and performed a song about her dad.
by Asmaa Javed | Dec 31, 2011 | Voices of ECD
A news story from the Yorkshire Post about a doctor who has been diagnosed with Erdheim-Chester Disease. He discusses his experiences in living with ECD.
