by Asmaa Javed | Jan 4, 2022 | News, Research & Awareness
The Erdheim-Chester Disease Global Alliance awards Young Investigator Research Grant to Italy doctor to explore the genetic landscape of ECD. The ECD Global Alliance (ECDGA) has awarded the 2021 ECD Research Grant to Dr. Francesco Pegoraro, with Meyer University...
by Asmaa Javed | Dec 16, 2021 | Community & Support, News, Research & Awareness
A new year of hope is on the horizon for the ECD community! View the 2021 Year-End Newsletter. The ECD Global Alliance is reaching new levels of support for those fighting Erdheim-Chester Disease with a matching gift campaign through December 31, 2021! Thanks to an...
by Asmaa Javed | Nov 3, 2021 | News, Research & Awareness
Tuesday, November 16, 2021 Join the experts during this scientific meeting to learn and share findings for histiocytosis. The 2021 Erdheim-Chester Disease Virtual Medical Symposium will be held online from 9:00 am to 2:15 pm CT (UTC -5) on Tuesday, November 16, 2021....
by Asmaa Javed | Sep 13, 2021 | News, Research & Awareness
Erdheim-Chester Disease Awareness Week September 13 – 18, 2021 #SharingIsKey #ECDawareness #AwarenessWeek The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community in raising awareness of the...
by Asmaa Javed | Jun 24, 2021 | Community & Support, News, Research & Awareness
The member-hosted ECD Virtual Run/Walk this month has served to raise funds for research on this rare disease, increase awareness, and pull together supporters for all those fighting ECD. The Atnip family gathered on the recent Father’s Day to reach new heights...
