by Asmaa Javed | Apr 22, 2022 | News
The ECD Global Alliance (ECDGA), a non-profit dedicated to supporting people affected by an ultra-rare blood cancer known as Erdheim-Chester Disease (ECD), honors deserving volunteers during National Volunteer Week. ECDGA volunteers are the life force of...
by Asmaa Javed | Jan 4, 2022 | News, Research & Awareness
A rare disease advocacy group awarded an Erdheim-Chester Disease Research Grant to conduct a survivor study. Uplifting Athletes is a nonprofit organization focused on using the platform of college football to shine a spotlight on rare diseases. Founded in 2007,...
by Asmaa Javed | Jan 4, 2022 | News, Research & Awareness
The Erdheim-Chester Disease Global Alliance awards Young Investigator Research Grant to Italy doctor to explore the genetic landscape of ECD. The ECD Global Alliance (ECDGA) has awarded the 2021 ECD Research Grant to Dr. Francesco Pegoraro, with Meyer University...
by Asmaa Javed | Nov 1, 2021 | News
A rare community will join together to connect & learn. Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again! During the challenges of the pandemic, serving our members remained the top priority. ...
by Asmaa Javed | Oct 12, 2021 | News, Research & Awareness
You can play a big part in fighting ECD. If you are a patient or direct caregiver, please participate in this survey by October 30, 2021. Take the Survey When the ECD Global Alliance (ECDGA) was formed research was needed to help improve the diagnosis and treatment of...
